ABOUT CYSTIC FIBROSIS
WHAT IS CYSTIC FIBROSIS?
Cystic fibrosis (CF) is the most common fatal genetic disease affecting Canadian children and young adults.
There is no cure.
CF is a multi-system disorder that primarily affects the lungs and digestive system. The degree of impact is different for each person, but recurring lung infections ultimately destroy the lungs, causing loss of lung function and ultimately death for the majority of people with cystic fibrosis.
One in twenty-five Canadians carries the gene that causes cystic fibrosis. While carriers do not have cystic fibrosis, they may pass the abnormal gene on to their children. When two carrier parents conceive, there is a fifty percent chance the child will be a carrier of the CF gene, and a twenty-five percent chance that the child will be born with cystic fibrosis. It is estimated that one in every 3,600 children born in Canada has this fatal disease.
Watch Tara's story below for a closer look at what it's like to live with cystic fibrosis.